Wow that sounds good. Did the doctor have a name for that surgery?
So far I can manage the pain but it doesn’t matter what you do, if your just sitting it starts to hurt, you have to move around, and do more than that especially using your back when compensating. Now it’s not just dealing with it but trying to avoid more wear and tear damage. Sometimes supplements help sometimes not much and try to strengthen my back muscles. Your brave to go through all those surgeries. I’m glad it was worth your journey too find you pain is now gone. I haven’t heard anything good about the initial spinal fusion. I’m glad the neurosurgeon could fix the problem. Unfortunately cigarettes seem to help but if not already around don’t go that way just compounds things. Psychological coping thing, happier with it till your not learned from the elders way back.
When a CMT causes over excitement of the nerves due to a trigger like over activity, sudden cold, different triggers it can be like a mixture of being tasered and or having a seizure but awake feeling the full pain of the muscle contractions. They give anti seizure medicine but from what I heard from other CMTers it doesn’t help much anyways to stop it or the pain. It probably put me in a higher level of pain tolerance. I told them ” groups” I accidently found that muscle relaxants stop it non opiate type works like Flexeril 5/10 mg. All over the world. Also a homeopath of copper to prevent them dure to it’s muscle relaxant properties but they understandably were focused on the Flexeril to stop the pain when it hits They were looking for help because the attacks are excruciating. Since then I haven’t seen any one searching for a answer but you don’t want it all the time just if it happens like angina or seizure and to try to avoid the triggers. A heating pad on hand will help what ever muscles it’s attacking I wonder if it would help stop seizures too instead of something like IM valium we gave that doesn’t always stop it right away like Flexeril can, just slow it down. Now they got a new form of it that causes more drowsiness. It’s a generic form of the good one but apparently that one is in the thousands. Luckily it’s something you don’t need to take too often less your still working and over exciting the nerves which I think causes more damage. But apparently the the other meds aren’t helping them too much to prevent the occasional pain attack that my case came at rest, like it held out until I could rest. Then after I got a handle on that something else came along to interfere with that lol
